Have your Say- UK Parliamentary Group Fibroid Patient Survey on Informed Choice

Fibroid Network UK Patient Survey

All Party Womens Group Survey- Informed Choice for Fibroids Patients

The All-Party Parliamentary Group on Women’s Health is a cross-party group of MPs and Peers in the UK Parliament of Westminster. The group aims to empower women to ensure that they can make an informed choice about the best treatment for them and that they are treated with dignity and respect.

The survey is available here: Click to go to the Anonymous Survey.

Link: https://www.surveymonkey.co.uk/r/fibroids-informed-choice#

The group has launched an inquiry into whether women are given an informed choice about the treatment options available for particular conditions. The group aims to produce a report which will assess if women are given an informed choice about treatment options and outline what further improvements might need to be made.

Fibroids is a condition the group would like to shine a particular spotlight on in this report and so would like to hear from patients about their own experience of living with and accessing treatment for fibroids.

We would be really grateful for your help in responding to this anonymous survey about your personal experience. Your responses will remain anonymous, but will help to ensure that women in the future are given full information about their treatment options and a fully informed choice about the treatment that suits them.

If you would like any further information about the report or the group’s work more generally please contact the group secretariat by emailing appgwh@pbpoliticalconsulting.com or calling 020 7735 6963. Completing the survey, is a rare opportunity to have your say about your care. You can add , how it can be improved? Whether you feel fully informed about the many fibroid treatments available. Did you understand the treatment options and outcomes. Did you meet your treatment goals? What info would help you in your treatment decisions.

 

PATIENT SURVEY HERE

 


Uterine Artery Embolisation, UAE for Fibroids Video

Uterine Artery Embolisation of Fibroids is a treatment carried out by a Radiologist , which is minimal surgery for Fibroids. A Specialist Radiologist , uses a substance to block the blood supply to the fibroids , so that it shrinks. This is a procedure that has been available in the UK on the NHS & privately. Women have experienced substantial shrinkage of their fibroids & relief from symptoms such as Heavy Periods (Menorrhagia, AUB) & pain. There have also been pregnancies after embolisation. Initially it was trialled on older women who didn’t wish to conceive , however younger women worldwide are now using the procedure & achieving pregnancy and therefore avoiding Hysterectomy (womb removal).

Dr Woodruff Walker, the leading Fibroid Embolisation specialist in the UK, has informative videos &  a website at http://www.fibroids.co.uk CLICK HERE

View the videos here:

Continue reading


Vitamin D Therapy for Fibroids

Vitamin D & Fibroids

Vitamin D deficiency has been identified as a Risk Factor for the development of fibroids. It has been suggested that Vitamin D therapy could be a new strategy for the prevention and/or treatment of fibroids. Or as a treatment used alongside existing strategies, to help to improve outcomes.

Studies are continuing to establish whether Fibroids can be caused and treated by lifestyle and/or Diet adjustments.

Uterine fibroids are the most common benign tumors affecting the health of women of reproductive age. Researchers previously underestimated the prevalence in society , of the condition. The prevalence of Uterine Fibroids is reported to be as high as 70% in Caucasian women and up to 80% of Black Women . Continue reading


Italian researchers have found a link between fibroids & diet

An Fibroid Study in Italy found that fibroids were more common in women who ate beef and ham frequently, and less common in women who ate more green vegetables & fruit had a lower risk of fibroids. Abstract of the Medical Paper Objective: To analyze the relation between selected dietary indicators and the risk of uterine myomas. Methods: They used data from a case-control study on risk factors for uterine myomas conducted in Italy between 1986 and 1997. Cases included 843 women with uterine myomas whose clinical diagnoses dated back no more than 2 years. Controls were 1557 women younger than age 55 who had not had hysterectomies and were admitted for acute nongynecologic, nonhormonal, nonneoplastic conditions. Results: Women with uterine myomas reported more frequent consumption of beef, other red meat, and ham and less frequent consumption of green vegetables, fruit, and fish. The multivariate odds ratios in the upper tertile were 1.7 for beef and other red meat (95% confidence interval [CI] 1.4, 2.2), 1.3 for ham (95% CI 1.0, 1.6), 0.5 for green vegetables (95% CI 0.4, 0.6), and 0.8 for fruit consumption (95% CI 0.6, 1.0). Parazzini, MD Istituto di Ricerche Farmacologiche “Mario Negri” Francesca Chiaffarino ScD, Fabio Parazzini MD, Carlo La Vecchia MD, Liliane Chatenoud ScD, Elisabetta Di Cintio ScD and Silvia Marsico MD “Diet and uterine myomas” Istituto di Ricerche Farmacologiche “Mario Negri,” Milan; and the Prima Clinica Ostetrico Ginecologica and Istituto di Statistica Medica e Biometria, University of Milan, Milan, Italy Alcohol especially Beer is also a Risk Factor for Fibroids . This Study involved 22,000 women.

References

  • Chiaffarino F1, Parazzini F, La Vecchia C, Chatenoud L, Di Cintio E, Marsico S. Diet and uterine myomas. Obstet Gynecol. 1999 Sep;94(3):395-8. PMID: 10472866.