Uterine fibroids are non-cancerous tumors on the uterine muscle . 99.95% of fibroids are benign & remain benign, even if they grow in size. Not all fibroids become very large & they vary in size from microscopic sizes to Watermelon size. The Authors grew to 8 months pregnancy size & weighed 11 pounds when it was removed. It was 22cm high & 33cm in diameter. It is not unusual for women to have more than 1 fibroid . (The author had 4). One US Doctor informed me that he’d removed 200 from 1 patient & still managed to retain preserve her womb. A myomectomy is the removal of just the fibroids, its similar to shelling peas from a pod if they are numerous. This article is an overview of Fibroid Research in relation to Diet, Treatments, Black women & fibroids, statistics, fertility and social issues involving fibroids. Continue reading
The first part of my fibroid story in a BBC article online “I had an 11lb fibroid removed successfully” by myomectomy , Click here to Read my BBC News item online. I was a patient Representative on the Heavy Menstrual Bleeding Guideline for NICE (National Institute of Clinical Excellence) which produces the Guidelines for the UK NHS, so that we could finally get access to more effective treatments for this condition. We were contacted by 1,000’s of women who suffered from Heavy Menstrual Bleeding & Fibroids. , I participated in creating a UK Guideline for Drs & Patients to help people who suffered from both these conditions. Thank you to all of my Fellow Guideline Development Panel members for this fantastic review of current treatments. Thank you to all the Members of Parliament & Womens Organisations who supported us , to help women get Informed, Patient Choice .
After this article was published I went on to have twins, without IVF.
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Fibroids are benign (non-cancerous) tumours. They occur in the uterus (womb). The womb is a hollow, pear shaped muscle.
Women worldwide have been faced with the unexpected news that they have fibroids. Most women have never heard of them prior to their diagnosis. For a woman the idea of a tumour occupying their womb is frightening especially in the absence of information about this benign problem. Some women feel a mixture of emotions, they are sometimes scared, sometimes embarrassed to discuss it with friends & family. Unfortunately the lack of information leads women to accept a hysterectomy (removal of the womb) for this treatable condition.
For reasons that are currently being researched, a single muscle cell in the uterus may begin to grow & multiply rapidly. The resulting tumour is called a fibroid. (The word ‘tumour’ often evokes fear because it is commonly associated with cancer, but ‘tumour’ in medical terminology simply means “new growth” or overgrowth of cells). The medical term for them is Leiomyomata (Leio= smooth myo=muscle). They are also called uterine myomas, fibromyomas or leiomyomas. Their size can vary. Some are microscopic or the same size as a pea and some can be as big as a melon. Fibroids can increase in size, decrease in size or even go away with time. They can occur anywhere in the womb and are named according to where they grow: Continue reading
The NHS NICE (National Institue for Clinical Excellence) Heavy Menstrual bleeding guideline (HMB) Guideline – CG44 was published in 2007. The HMB Patient Guide to Treating Heavy Periods is available for FREE download here:
CLICK HERE for the FREE DOWNLOAD of the full , Evidence based 2007 UK Heavy Menstrual Bleeding (HMB) GUIDELINE for Patients & NHS Healthcare Providers: with full research & evidence on treating Heavy Periods including recommended Drug Treatments & Surgery with or without Fibroids Published January 2007 . Please note that this Guideline is being reviewed with a current target date of March 2016, particularly in respect of medical Treatments for Fibroids.
HMB Guideline Updates:
The Guideline wishes practitioners & patients to be aware that ‘Oral progestogen (norethisterone)which was previously recommended , is not licensed for use as a contraceptive, but may affect a woman’s ability to become pregnant while it is being taken. This is one of a number of treatments , due for review. Please see website
Patient Feedback Post 2007 HMB Guideline
From a patients perspective, we would also want an urgent NHS review of all medical & surgical treatments, including Hormonal Contraceptives & Mirena , which are now being used as treatment for Menorrhagia & Fibroids. We have received Patient feedback, that Women with Fibroids are not being given full informed choice of treatments available , including Uterine Fibroid Embolisation & Myomectomy in situations where it is recommended in the guideline.
Women have told us that they are only being offered Medical treatments or Hysterectomy. They have also stated that they have not been given written information about their Menorrhagia (Heavy Periods) or Fibroids, and the full rage of options available, to assist in their decision making. They have also not been advised of the Risks & benefits of the Medical Treatments & Hormonal Contraceptives offered. And they have not been told that if they have relief from symptoms, using medical treatments, the relief only lasts as long as the medical treatment is being taken & the symptoms are likely to resume if medical treatment is discontinued.
We have also had feedback that even where further fertility is not desired by a woman, Doctors are not considering some patients desires , not to be given a premature surgical menopause by having a Hysterectomy (Womb Removal). Continue reading