MISSION STATEMENT

Fibroid Network is a UK based, Patient Led volunteer, support group, serving as a focal point for women’s fibroid and health issues with the aim to improve women with fibroids, healthcare and health education in the United Kingdom and internationally.

It is independent, group, sharing up to date information about fibroids, helping women to make informed choices about alternative treatments to hysterectomy (removal of the womb). Fibroid Network will be providing details of International news & discussion groups, events, contacts, books & articles to the Community. Continue reading


What are Fibroids?

Fibroids are benign (non-cancerous) tumours. They occur in the uterus (womb). The womb is a hollow, pear shaped muscle.

Women worldwide have been faced with the unexpected news that they have fibroids. Most women have never heard of them prior to their diagnosis. For a woman the idea of a tumour occupying their womb is frightening especially in the absence of information about this benign problem. Some women feel a mixture of emotions, they are sometimes scared, sometimes embarrassed to discuss it with friends & family. Unfortunately the lack of information leads women to accept a hysterectomy (removal of the womb) for this treatable condition.

For reasons that are currently being researched, a single muscle cell in the uterus may begin to grow & multiply rapidly. The resulting tumour is called a fibroid. (The word ‘tumour’ often evokes fear because it is commonly associated with cancer, but ‘tumour’ in medical terminology simply means “new growth” or overgrowth of cells). The medical term for them is Leiomyomata (Leio= smooth myo=muscle). They are also called uterine myomas, fibromyomas or leiomyomas. Their size can vary. Some are microscopic or the same size as a pea and some can be as big as a melon. Fibroids can increase in size, decrease in size or even go away with time. They can occur anywhere in the womb and are named according to where they grow: Continue reading


Fibroid Support Groups UK & USA

Recommended Links for more information on Fibroids & Symptoms Worldwide (Full Fibroid Directory Coming Soon)

Fibroid Patient Support Groups UK & USA

UK

FEmISA Patient Led Support Group produced by women with fibroids, successfully treated by Uterine Artery Embolisation Patient Experiences, Support & Advice   http://www.femisa.org.uk
FEmISA was set up by women whose fibroids were successfully treated by embolisation who  were keen to avoid hysterectomy and we want to ensure that other women have access to embolisation for the treatment of uterine fibroids by:

  • Informing potential patients/women and GPs and gynaecologists about embolisation and its benefits.
  • Promoting embolisation as the treatment for uterine fibroids.
    Supporting women with fibroids.
  • Helping and lobbying to ensure that all women have access to this treatment.

British Fibroid Trust Charity     http://www.britishfibroidtrust.org.uk Continue reading